AYA Program Staff Publications

We wanted to make you aware of some recent papers published in the medical literature by the staff of  the AYA Cancer Programs you have helped the Alliance support and promote.   
 
You’ll recognize many of the authors because they are affiliated with, or trained under the guidance of, the Reid R Sacco AYA Cancer Programs at Tufts or at Connecticut Children’s Hospital. 
The following is just a sample of the body of knowledge these Programs are building, on behalf of adolescents & young adult cancer patients and survivors.

Published in the Journal of Adolescent & Young Adult Oncology in July 2020 this paper is particularly relevant as it is based on data generated by the Reid R Sacco AYA Cancer Program/Clinic at Tufts.

"The Creation of a Comprehensive Adolescent and Young Adult Cancer Survivorship Program: "Lost in Transition" No More"

Published in December 2019, you’ll find this next paper relevant to the one above.  Published in the same journal and authored by some of the same individuals, it reports on the feasibility of a unique approach for raising “awareness of adolescents and young adults (AYAs) who have been diagnosed with cancer between the ages of 15 and 39 years among similarly aged university students”. 

"Personal Narrative: Raising Awareness of Adolescent and Young Adult Cancer Survivors in Similarly Aged University Students"

In its September 2020 issue, the Journal of Clinical Oncology published an editorial authored by Susan K Parsons, MD, MRP (Medical Director of the Reid R Sacco AYA Cancer Program at Tufts).  She shares her perspective on health-related quality-of-life studies in survivors of Hodgkin lymphoma, including children and adolescents

"Longitudinal Assessment of Health-Related Quality of Life Among Survivors of Hodgkin Lymphoma: It Is About Time!

Michael S. Isakoff, MD (Medical Director of the Reid R Sacco AYA Program at Connecticut Children’s Hospital) co-authored this paper published in the March issue of Cancer on the evolving framework for treating pediatric sarcomas.  You’ll recall that sarcomas, although considered a ‘rare’ cancer, represent 10% of the invasive cancers that strike AYAs.   

"An evolutionary framework for treating pediatric sarcomas"

Natasha N. Frederick, MD, MPH, MST (Connecticut Children’s Hospital and expert in the areas of Adolescent and Young Adult Oncology and in Sexual and Reproductive Health in Adolescent and Young Adult Oncology Patients) was the primary author of a paper published in the May 2020 edition of Pediatric Blood Cancer.  She and her co-authors examined “the state of current fellowship education about sexual and reproductive health for the AYA patient”.  

"Pediatric hematology and oncology fellow education in sexual and reproductive health: A survey of fellowship program directors in the United States"